Someone with your condition may have already found something that helped.
We use AI to find published cases where a drug, herb, therapy or lifestyle change helped a person with a rare disease. Players check the evidence. You get leads you can act on, and a summary your doctor can't ignore.
Find a doctor
Rare-disease experts, genetic counselors, and licensed integrative practitioners, plus questions that tell you whether a doctor will really help.
Find a doctorSearch treatment leads
Every lead shows how strong its evidence is, from a single case report to a clinical trial.
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Check the cases our AI finds. Each judgment you make helps someone get a better answer.
What we stand for
Many treatments that could help people with rare diseases are already known, scattered across case reports and journals no single doctor has time to read. We believe AI can find them faster and more cheaply than the old way, without animal testing. We do not fund or promote animal testing.
This site shares published evidence. It does not diagnose, prescribe, or replace a qualified practitioner.
Find someone who knows your condition and will listen.
With a rare disease, the right practitioner matters more than the nearest one. Below are trusted places to start, for conventional and holistic care. We don't run these services or get paid by them.
Rare-disease experts
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NORD Rare Disease Centers of Excellence
United StatesA network of academic medical centers that care for people with any rare disease, including complex and unusual cases.
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GARD: Genetic and Rare Diseases Information Center
United States · NIH · freeFree information specialists who can help you find specialists for your disease, in English or Spanish. They don't give medical advice.
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Find a Genetic Counselor (NSGC)
United States and Canada · in person or telehealthGenetic counselors explain test results and inheritance, and often know which specialists see your condition.
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Undiagnosed Diseases Network
United States · research studyFor people still without a diagnosis after a thorough workup. You apply online, and you'll need a signed letter from a healthcare provider.
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European Reference Networks
EU, Norway, Ukraine · through your doctorNetworks of specialist hospitals whose expert panels review difficult cases. Your treating doctor makes the referral, so bring them a clear summary.
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Orphanet expert centres
Europe and beyondSearch your disease, then look for its expert centres. You can filter by country and by adult or children's care.
Holistic and integrative practitioners
Some people find relief from approaches their conventional doctors never mention. These directories list practitioners who hold a recognized certification.
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Medical doctors, osteopaths, chiropractors, nutritionists and others trained in functional medicine, which looks for root causes across body systems.
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Nationally board-certified acupuncturists and Chinese herbalists. Listing is voluntary, so also check your state's licensing board.
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Chiropractors and other licensed practitioners
Your state or countrySearch "[your state] board of chiropractic" (or acupuncture, naturopathy, massage) to confirm a license and see any complaints.
Some rare diseases change what's safe. For example, neck manipulation carries extra risk for people with connective-tissue disorders, and some herbs interact with prescription drugs. A good practitioner will want to know.
Questions that show whether a practitioner will help
- Have you cared for anyone with my condition, or one like it?
- If I bring published case reports, will you read them and tell me what you think?
- Will you work with my other doctors and practitioners, conventional and holistic?
- If you can't help, can you refer me to someone who can?
- Do you offer telehealth, so distance isn't a barrier?
What to bring
- Your diagnosis and any genetic test results.
- A list of everything you take: prescriptions, supplements, herbs.
- What you've tried, and what helped or didn't.
- Your one-page evidence summary Coming
Links checked October 2026. Organizations change their sites; if a link breaks, search the organization's name.
Search treatment leads
Search published cases where a treatment helped someone with a rare disease. Every lead will show how strong its evidence is and offer a summary to take to your practitioner.
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Our AI finds cases where a treatment may have helped. You check them against the source. Each answer makes the search results more trustworthy.
My health history
Build an accurate health history that stays on your own device. You decide whether to share it, and anything shared is anonymous.